It has been along time since I updated my site. So many things have happened. The Dexcom died and has been replaced. The insurance company will not allow us to refill anymore Novolog nor the Freestyle test strips at the local pharmacy. It has been so much headache and countless heart ache. If I have to go through this, what would Mr. R have to go through when I no longer able to fight for him and his right? I want a cure now for him so bad that I pray for it every day! I pray that he will have a normal life.
Tomorrow is his first day at the new school. I don't know what to think about the new health aide yet. I surely will miss sweet Ms. Julie who took care of Mr. R the whole year last year.
We went to meet with the district nurse last week. So many things to figure out! The Healthcare plan, PDM, Dexcom, spare insulin, backup pod, Glucagon, juices, snacks and etc! How am I ever going to figure things out, only god knows.
I hope all will go well tomorrow. I hope they find a cure soon. I hope we will win this war with the insurance company and with Abbott. I'm tired of explaining to ignorant people who doesn't seem to know what it feels like to have a sick child who appears normal because his parents struggles to keep him healthy and normal. No one knows what it takes to keep him healthy!
Please God! help us out... I'm so overwhelm...
Monday, August 22, 2011
Tuesday, August 9, 2011
Fasting for Ramadhan
Ramadhan started on August 1st of this year. Ramadhan is always a delightful month for my family. It is the month full of praying, offering, patience, delicious food i.e. desert, drinks and etc. For this special month, my husband, Mr. N and I fast from dawn to dusk.
To reward Mr. N for his hardwork and dedication, I always ask him what he would like to have for dinner (this is when we break our fast). I normally cook something spicy, veggie dish, something for the kids and and of course desert and not forgetting special drinks (fruit juices, or what ever the kids requested). Alas, all he wants, if he could have it his way, is to eat cheese pizza and chicken wings everyday.
Mr. R is not allowed to fast yet. Although he has reached the age where most kids have started to fast, Mr. R is not allowed to fast due to his diabetic condition. His blood sugar will crash if he doesn't eat when he is supposed to eat. Some people just don't understand this. I know some parents who have kid/s with Type 1 Diabetes have gone through this before too.
Not many people know that:
Type 1 Diabetes can't be controlled with diet.
There is NO CURE yet! Please stop recommending herbs, special milk, special machine that can zap the pancreas back to life..
He did not ate too much sugar !!!!
He can't fast because his body can't regulate his blood sugar.
What your parents, aunties or uncles have is Type 2 Diabetes, that could be control via diet, exercise, herbs, special milk and etc... this is not the same as Type 1 Diabetes. Sorry to sound so mean but what works for your mom or dad or uncles might not work for my son because it is not the same condition... :-(
However, we do accept prayers for cure...
So, back to my ramadhan story here.
My mom promised a reward to Mr. N if he can complete the full 30 days of fasting. Mr. R was devastated that he was not allowed to fast. His main complained was "How am I going to make some money?".
Hahahaha! I told him since his brother is fasting, he should help his brother clean up the room and make sure that my garden is watered. I will reward him just by being nice and helpful around the house.
So what do I cook tonight? Mr. N wanted meat cooked in Indonesian style. Our nanny slow cooked the meat that has been cut thin with kluwek (not sure if I spelled this correctly) and salam leaves. The result is tender meat with black sauce called Rawon. We will also have eggplant (from our vegetable garden) stir fry in chilli with peanut, steam fish and last but not least telur dadar or omelette with cheese and sheredded chicken for Mr. R. For desert we will have Spring Fling cake made with zucchini from our garden. For drinks, Mr. M requested sweet, ice cold tea.
We will be breaking our fast at around 8:05pm tonight. We will sleep early and wake up around 3:30am to eat before the sun is up and we will start to fast again...
To reward Mr. N for his hardwork and dedication, I always ask him what he would like to have for dinner (this is when we break our fast). I normally cook something spicy, veggie dish, something for the kids and and of course desert and not forgetting special drinks (fruit juices, or what ever the kids requested). Alas, all he wants, if he could have it his way, is to eat cheese pizza and chicken wings everyday.
Mr. R is not allowed to fast yet. Although he has reached the age where most kids have started to fast, Mr. R is not allowed to fast due to his diabetic condition. His blood sugar will crash if he doesn't eat when he is supposed to eat. Some people just don't understand this. I know some parents who have kid/s with Type 1 Diabetes have gone through this before too.
Not many people know that:
Type 1 Diabetes can't be controlled with diet.
There is NO CURE yet! Please stop recommending herbs, special milk, special machine that can zap the pancreas back to life..
He did not ate too much sugar !!!!
He can't fast because his body can't regulate his blood sugar.
What your parents, aunties or uncles have is Type 2 Diabetes, that could be control via diet, exercise, herbs, special milk and etc... this is not the same as Type 1 Diabetes. Sorry to sound so mean but what works for your mom or dad or uncles might not work for my son because it is not the same condition... :-(
However, we do accept prayers for cure...
So, back to my ramadhan story here.
My mom promised a reward to Mr. N if he can complete the full 30 days of fasting. Mr. R was devastated that he was not allowed to fast. His main complained was "How am I going to make some money?".
Hahahaha! I told him since his brother is fasting, he should help his brother clean up the room and make sure that my garden is watered. I will reward him just by being nice and helpful around the house.
So what do I cook tonight? Mr. N wanted meat cooked in Indonesian style. Our nanny slow cooked the meat that has been cut thin with kluwek (not sure if I spelled this correctly) and salam leaves. The result is tender meat with black sauce called Rawon. We will also have eggplant (from our vegetable garden) stir fry in chilli with peanut, steam fish and last but not least telur dadar or omelette with cheese and sheredded chicken for Mr. R. For desert we will have Spring Fling cake made with zucchini from our garden. For drinks, Mr. M requested sweet, ice cold tea.
We will be breaking our fast at around 8:05pm tonight. We will sleep early and wake up around 3:30am to eat before the sun is up and we will start to fast again...
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